To explore the caregivers’ perspectives on future planning for their adult children with intellectual disabilities in Hong Kong

Abstract

This research project aims to investigate the perspectives of caregivers regarding future planning for their adult children with intellectual disabilities in Hong Kong. The study seeks to describe the process and perspectives of caregivers' future planning, explore the aspirations and barriers they encounter in their planning efforts, and identify the types of support caregivers require for active engagement in the decision-making process related to future planning. The research questions guiding this study are as follows: How do caregivers of adult children with intellectual disabilities perceive and approach future planning? To what extent have caregivers' expectations for support, both formal and informal, been met in fulfilling the needs of their adult children with intellectual disabilities? What are the aspirations of caregivers for the future of their adult children with intellectual disabilities, and what barriers do they encounter in making future plans? The proposed methodology for this study involves qualitative research through in-depth interviews with caregivers. This approach allows for a comprehensive exploration of their challenges, experiences, and opinions on the study. The study's main finding is that caregivers strongly hold the belief that residential care is the primary and often the sole option for their adult children with intellectual disabilities when planning for their future. They perceive their children as incapable of living independently in the community without parental care and view residential care as the only feasible choice. The availability of formal and informal care influences the decision-making process, with those receiving support from family and domestic helpers preferring to keep their children at home. However, challenges such as a lack of guidance from social workers and limited government support impede the implementation of long-term plans. A comprehensive understanding of caregivers' perspectives and needs is of utmost importance in developing effective support systems and policies for individuals with intellectual disabilities and their families. The findings of this study have significant implications for the design of support systems that address the unique needs of caregivers and their adult children with intellectual disabilities in Hong Kong. It highlights the critical need for increased support and resources for caregivers of individuals with severe intellectual disabilities. Person-centred care within residential services and fostering collaboration between caregivers and staff are indispensable. Policy changes and appropriate allocation of resources are imperative to enhance the quality of care provided. Social workers play a crucial role in transition planning, and there is a need to enhance the knowledge and skills of professionals in the social work field. Moreover, ensuring continuity in schooling and residential services is vital for the well-being of individuals with intellectual disabilities and their caregivers. By addressing these implications, individuals with intellectual disabilities and their caregivers can receive comprehensive support, leading to an improvement in their overall well-being. Furthermore, further research is recommended to explore community care options that are specifically tailored to individuals with mild intellectual disabilities. In conclusion, this study contributes valuable insights into the experiences and challenges faced by caregivers in future planning for their adult children with intellectual disabilities in Hong Kong.